Monday, December 28, 2009

Answers...or Not...

This morning, I got the results of my latest skin biopsy - as I predicted, NEGATIVE. Now, this is a good thing...this was a definitive lupus test - and the Mayo Clinic said no, I do not have lupus. This is very good.

However, we are back to square 1 - itchy, nasty rash that keeps coming and going, swollen fingers and fatigue, and an elevated antibody count in my blood. So now, we just wait for three months, to give the medication (Plaquenil) an opportunity to work. While this is a very good drug, "fast" is not an appropriate adjective for this medication. I return to the rheumatologist on March 10 for further bloodwork to see if the Plaquenil is working. If it isn't....then I don't know what is next.

So for now, our goal is to manage the rash as it comes - my dermatologist has asked me to come back during the healing process of the rash, because that is the only stage she has not seen it in. She is quite fascinated by all of this - not surprising given her interest in research. So I laughed and said sure.

On a positive note, I seem to be regaining at least some level of energy - enough to go through the unfinished part of the basement and the garage and clean and sweep them out. I also painted over the burgundy wall in my living room yesterday - all of which are good signs. But I still tire easily and some mornings, feel the full effects of gravity in my warm bed...

So that is the plan of action here. Can't say I am surprised, but am somewhat relieved to know I do not have lupus. Merry Christmas to me. :) Hope everyone had a great holiday with family and wishing everyone a safe New Year.

2 comments:

Mimi and CC Cabana said...

Phew, I'm glad you don't have lupus--although I'm sure it would be nice to know WHAT it is! Three months is a long time--but with the way days charge by, it will be here before we know it.

Glad you have the energy to do some things. My hurt back made me crazy for the past couple weeks, so I know what it's like to want to do something and not be able to.

Painting, cleaning, sweeping are my kind of fun, actually--but are they yours? I hope you'll save some energy for something less productive!

Becky said...

Relief on the negative on lupus. Frustrating that it is taking soooo long to find the answer. Hope this new med is helpful.